Robotistry

@originalucifer @Nuke_the_whales I liked the show as much as but in a different way than the comics. Different, but still good.

@Cetraria @tomkindlon @longcovid @mecfs I have cognitively-triggered PEM as well, so physical symptoms don’t help much. The only thing that reliably helps is a strict routine and pacing. I can adjust that routine gradually over time, constantly adapting to whatever the current baseline is, but I’m not managing any specific symptoms, only how symptoms change with changes to that routine. (Feeling peppy = overdid it yesterday + flare coming.)

@liv @longcovid @mecfs @tomkindlon Once the symptoms start, they limit me. As I pace, I reach a point where the symptoms are tolerable. I can either hold activity low (so the symptoms recede like the tide, with lots of small individual waves) or do more (the symptoms hold steady).

As my baseline rises, my symptom severity holds steady because it is more important to me to bathe more often and have a clean bed than to reduce my symptom severity.

@tomkindlon @longcovid @mecfs It’s not about “managing the symptoms”. It’s about “managing my capacity for activity”.

A viable, useful treatment would increase my capacity for the same level of symptoms.

Anything that focuses on symptom severity is doomed to fail - I don’t have symptoms that can be usefully managed, I have capacity limitations that trigger symptoms, and the clinician’s job should be to help me identify those limitations!